Get Involved
Support Groups
Join us for “Tethered Tuesdays,” a peer-led, virtual support group that meets to discuss life with tethered cord syndrome. Tethered Tuesdays comes in 2 sizes: Adults & Kids.
Our adult tethered cord group meets:
1st Tuesday of the month at 7pm CST
3rd Tuesday of the month at 12pm CST
Our pediatric tethered cord group meets:
2nd Tuesday of the month at 12pm CST – Parents
4th Tuesday of the month at 5pm CST – Kids
Email TetheredTuesdays@gmail.com for links to join & more details.
Facebook Groups
There are three main Facebook groups for Tethered Cord Syndrome, to which we are unofficially affiliated. All are private groups that are run by patients.
Peer Support Program
Our peer support program that allows us to connect high-quality, experienced mentors with people who are new to tethered cord or looking for extra support. Peer mentors offer one-on-one support and follow TCSA protocols for communication and knowledge sharing.
Provider Directory
We are working to compile a provider directory of those who provide excellent care for tethered cord. Whether you seek to nominate a provider you have experience with, or seek to nominate yourself, choose your option below.
Share Your Story
We’re collecting stories to share on our website in order to encourage those going through the tethered cord diagnosis, treatment, and recovery process. Your story matters, and by sharing it with others you could make a meaningful difference in someone else’s life!
By sharing your journey, from the first signs and symptoms to diagnosis, treatment, and beyond, you can help raise awareness, offer encouragement, and build a sense of community for others walking a similar path.
Whether your journey began recently or many years ago, every experience helps others feel less alone and more empowered.
With your permission, we may feature your story on our patient story page or in educational materials to help inform and inspire others facing this complex condition.
Looking for more ways to get involved with TCSA?
We’re just getting started, and we’d love to discuss opportunities to collaborate! Contact us at hello@tetheredcord.com or via the contact form linked below. Please join our newsletter as well to keep up to date!