

Summer brings sunshine, vacations, family gatherings, and outdoor adventures, but for many people living with Tethered Cord Syndrome (TCS), warmer temperatures can also bring unique challenges. Increased pain, fatigue, muscle spasms, bladder concerns, and heat sensitivity can make the season feel more difficult to navigate. The good news? A little planning can go a long…

The beginning of a new school year brings new opportunities and new excitement! For families of children with tethered cord syndrome, it can also bring concerns about how to ensure your child receives the support they need to thrive in the classroom. Because children with tethered cord syndrome do have unique needs that can…
Tethered Cord Support Alliance (TCSA) Privacy Policy Effective Date: Last Updated: The Tethered Cord Support Alliance (TCSA) is committed to protecting the privacy and confidentiality of the individuals we serve. 1. Information We Collect Personal Information Name Email address Mailing address Phone number Organization or professional affiliation Donation or payment information Event registration information Volunteer…

Tethered cord syndrome is a complex condition with a wide range of possible signs and symptoms. Because the spinal cord is under abnormal tension, symptoms can involve multiple systems of the body and may change or worsen over time. Early recognition and evaluation are key to preventing permanent nerve damage. Below are some of the…

Dear Friends, Welcome to Tethered Cord Support Alliance! I’m honored to share this message with you, our incredible community of patients, families, professionals, donors, and advocates. As we work together to improve medical care and quality of life for individuals with tethered cord syndrome, we are not only filling an important need but also lifting…